Personal Reasons for Researching Fibromyalgia

Yesterday’s daily blog covered research on lactate. Studies have found people with fibromyalgia have increased levels of lactate in their brains. I explained what lactate is, and what the research means for the fibro community.

Before that, I introduced you to this project by explaining what inspired me to begin. I want to help people in the fibro community, including myself, cut through the rampant fake news available regarding our illness. I want to make sense of the data and details and decode it for us so we can have a better shot at symptom reduction and a higher quality of life. So we can thrive.

Today, I thought I’d use this time to talk about the more personal reasons behind this project.

#1 I want to make targeted health choices.

We shouldn’t make “best guesses” when it comes to the holistic health products and practices we prioritize based on the amount of dollars we can or cannot spend.

Simply put, research helps us save money and make more informed choices. I'd always like to be doing more of both.

For example, when you go into the grocery store, natural food store, or the online vendor of your personal choosing, you see many options that can quickly add up to hundreds of dollars. Many are unnecessary, useless, or not readily available to your system.

These are the ones listed in the Fibro Manual, a book written by a doctor and fellow fibromyalgia patient. You should definitely read if you already haven’t. Dr. Ginevra Liptan discusses the advantage of taking targeted supplements, and I’m all for it. Since reading it, I’ve made my personal supplement regime around her advice and my budget.

Targeted supplements for fibromyalgia include:

  • Activated B vitamins - energy

  • CoQ10 - energy

  • Vitamin D - can help with muscle pain and weakness

  • Fish oil - inflammation

  • Magnesium - good for muscle cramps and sleep issues

  • Probiotics - for digestive support

  • Digestive enzymes - to help your body absorb the nutrients

Taking quality holistic nutritional supplements that include a mix of the above in bioavailable forms (think: oils, oils in cellulose capsules, liquids, or fresh-pressed pill formulations like those from specialty retailers or homemade) is one part of managing a chronic illness.

#2 The coronavirus has made me realize how little we still know about fibromyalgia - and why this matters.

When the news kept repeating the term ‘vulnerable persons’ or those in high-risk categories, I didn’t know if I fit as a person with fibromyalgia. This concerned me and reminded me how little I know about my diagnosis, still, nearly a decade later.

I mean, I know fibro is not an auto-immune disorder, but does it count as an underlying condition? Surely it has an impact on the strength of the immune system, but how would I know for sure? I found myself googling and getting frustrated by articles claiming fibro is all an immune issue to begin with and "healing" it will fix the fibro... I was thinking more so that our symptoms may make our immune systems more vulnerable, ie). lack of sleep makes us more susceptible to illness... But, as always, I want proof.

Reaching out to the online community only confirmed to me how different the information is that we receive, seek, and find out about this illness, depending on when, where, and how we come to be diagnosed, and it was kind of all she wrote from there. This is not our fault. Tomorrow, I’ll take on the topic of fibromyalgia and the immune system by digging into some research and sharing the findings & thoughts here.


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